WELCOME TO MY BLOG

I have just been diagnosed with a Nasopharyngeal Carcinoma of my right tonsil, this means I have a malignant tumour on my tonsil. This has grown into my soft palate, which makes surgery very difficult.

I have decided to setup this blog for people to read through what my journey to recovery will be and the treatment I will receive on the way.

I am sure there will be some high and low points, some funny moments and some deep dark days ahead, but hopefully for anyone in the same situation as me it gives you some hope, tips on what to do and above all else the FIGHT to get through what can only be described as a very tough ordeal.

Wednesday, 25 January 2012

Some Good News

So a usual day today, into work and then off to have my daily treatment, all normal....

I then see the Prof. (Donde) and again concerned that I have lost more weight - down to 92kgs, but then we go through the checklist:
Skin ok - check
Hydration good - check
Mouth sore eh yes - not sure why he asked that having just looked in my mouth!!
Taste none - check
He is amazed that I am still eating solid food, of course not enough but still he is impressed
He also tells me that I look remarkably well for the point I am at

He then tells me that the cancer has gone and that he can see know signs of it in my mouth or neck, the lymph in my neck that was enlarged has also dispersed. I thought I would feel the euphoric sense of achievement, relief or something, but it was I think a bit of "oh good, thanks" or it hasn't really hit me yet the enormity of what he had just told me, maybe because you have kind of lived with this for so many months that the reality doesn't really come through, and after all he did tell me he would cure me, so what should I feel euphoric about, he has done his job lol! I may jest but maybe that is how I have handled it, keep a sense of humour, have a smile it lifts all around you, especially in an oncology centre and most important of all be selfishly positive about the outcome and you will get there

He then sweetens it further and tells me that my treatment is now 31 days, not 35, so I finish next Saturday 4th February - so a very satisfying, good news day. He does add that the following two weeks or so after treatment are tough, but at least you haven't got more radiation going into your body, my taste will start to comeback and should fully recover within 3 months, my appetite will return and my left side salivary glands could take up to a year to kick in, so dry mouth will hang on in there I guess!

I then get the low down on next steps and they see me two weeks after I finish the treatment course for a check and then potential every 3 months, where if necessary they do a scan.

I then go and see Dr Boyes-Varley, adds that there is no infection and that we can start to put teeth back in at the beginning of March once my mouth has settled down - I can't wait!!

So, the finishing line is now in sight, it seems amazing how from feeling you have hit the wall to getting through it and carrying on feels, I think I might have to run a marathon when I am fit again and yes it would certainly be all proceeds to cancer research - any sponsors?? lol!, because these guys have been truly unbelievable and I will probably never be able to thank them enough for all they have done for me.

I guess in the next week I will sign off, add some adhoc moments post my treatment and then happily add each year as we go through one, thanks again for following my blog, unloading some of this stuff has certainly helped me and I hope in future it may help others...25th January will always be a good day for me

2 comments:

  1. Hi Stephen

    How are you doing now?

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    Replies
    1. I am doing great thanks - it has been almost 10 years since I was diagnosed and have appreciated everyday, thanks for asking though

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